C-ALS is a prototype tool that was created with a view to helping healthcare practitioners identify people with Amyotrophic Lateral Sclerosis (ALS) at risk of low Quality of Life (QoL) sooner and to facilitate the discussion around QoL and potential supports with them and with colleagues. The user can input the values of the parameters required. Then, the system will automatically output the probability of low QoL, along with verbal and graphical explanations of the impact that each parameter value had on this output.
At the moment our system uses three parameters: the patient’s ALSFRS-R score for orthopnoea, the patient’s age at disease onset, and the primary caregiver’s employment status before the onset of their caregiving duties. These parameters were found to be associated with the QoL of people with ALS in our previous work (link to article).
If you want to read more about the system and its first evaluation you can also refer to this article: https://www.mdpi.com/2075-4426/12/3/435/htm.
